NIGMS Human Genetic Cell Repository Assent Form for Children
This file provides information about the assent process for children donating a sample for the NIGMS Human Genetic Cell Repository. It explains what the repository is, what will happen if the child participates, and the voluntary nature of participation. The form includes a section for the child to print their name and sign if they choose to donate a sample.
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How do I fill this out?
To fill out this form, you will need to understand the purpose of the NIGMS Human Genetic Cell Repository and the process of donating a sample. Make sure to read through the instructions carefully and explain any necessary information to the child. Finally, the child will need to print their name and sign the form if they choose to donate a sample.
How to fill out the NIGMS Human Genetic Cell Repository Assent Form for Children?
1
Read the explanation about the NIGMS Human Genetic Cell Repository and its purpose.
2
Understand the process and implications of donating a sample.
3
Explain any necessary information to the child.
4
Have the child print their name on the designated line.
5
Have the child sign and date the form if they choose to donate a sample.
Who needs the NIGMS Human Genetic Cell Repository Assent Form for Children?
1
Parents or guardians of children aged 7 through 17 who are potential donors.
2
Researchers who need assent forms for their studies involving children.
3
Institutes or organizations involved in genetic research.
4
Cognitively impaired individuals’ caregivers who need consent forms.
5
Educators or healthcare providers explaining research participation to children.
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What are the instructions for submitting this form?
To submit this form, carefully fill out all required fields including the child's name, signature, and date. Ensure that the child understands the information provided and voluntarily agrees to participate. Completed forms can be submitted via email to NIGMSHGCR@research.org, faxed to (555) 555-5555, or mailed to NIGMS Human Genetic Cell Repository, 123 Research St, City, State, ZIP. For online submission, use the form submission feature within the PrintFriendly PDF editor. Our advice: double-check all information before submission to avoid delays in processing.
What are the important dates for this form in 2024 and 2025?
This form is revised as of June 2015, and no specific expiration dates for usage are provided in 2024 and 2025.
What is the purpose of this form?
This form is designed to collect the assent of children aged 7 through 17 who wish to donate a sample to the NIGMS Human Genetic Cell Repository. The repository aims to store cells from individuals with inherited diseases to help researchers understand the causes of these diseases and develop potential cures or preventive measures. By obtaining assent from children, the form ensures that they are informed and voluntarily agree to participate in the study, while also obtaining the required legal consent from their representatives.
Tell me about this form and its components and fields line-by-line.
- 1. Title: The title of the form: 'NIGMS HGCR Assent Form'.
- 2. Introduction: An explanation of assent, the NIGMS Human Genetic Cell Repository, and the donation process.
- 3. Participation Process: Details on what will happen if the child participates, including potential discomforts and voluntary nature of donation.
- 4. Child's Name: A field for the child to print their name, indicating their assent to participate.
- 5. Signature and Date: Fields for the child to sign and date the form if they choose to donate a sample.
- 6. Form Revision: The form's revision information: Form 1401-64 Rev C-072015.
What happens if I fail to submit this form?
If you fail to submit this form, the child will not be able to donate a sample to the NIGMS Human Genetic Cell Repository.
- Research Impact: The potential contribution to genetic research would be lost.
- Documentation: Incomplete or missing documentation may affect legal and ethical compliance.
- Future Treatments: Delayed understanding and development of treatments for inherited diseases.
How do I know when to use this form?
- 1. Parental Consent: When a legal representative provides consent for a child to participate.
- 2. Cognitively Impaired Subjects: When seeking assent from cognitively impaired subjects for sample donation.
- 3. Biobank Participation: For enrollment in studies involving the NIGMS Human Genetic Cell Repository.
- 4. Genetic Research: When researchers need parental and child permission for genetic studies.
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